Paige finally got her central line in today. I guess 4 times the charm. We had the best of the best of nurses get her all hooked up. She was sedated heavily when we saw her. She’s resting comfortably now.
The babies had their cardio and head scan follow-ups today. The news isn’t so good. Kaylee’s PDA closed. Paige’s didn’t and they are going to operate tomorrow. It’s a relatively simple surgery, but scary nonetheless. Cole’s PDA is still open, but they are going to wait and see what happens with it. Chances are he’ll need the same surgery as his sister. The PDA surgery involves them making a small cut near the rib cage and spreading their ribs. They then do some things with the lungs and finally put a metal clip on the PDA which will close it. That clip will be in them the rest of their lives.
Paige’s head scan was much better than before. Her bleeding lightened up and she definitely improved. Cole’s head scan was about the same. That is the best we could hope for. The bad news is Kaylee. She prevously didn’t have a brain bleed but she developed a level 4 brain bleed this week. It’s just one of those things that can happen to a preemie in the first 7 days of life. The prognosis isn’t good. The bleed is probably going to get worse. We’ll keep you posted on her, but after talking to the doctors, we are preparing for the worst. The neurologist is going to get involved and we are going to do a follow-up scan on Thursday when we will know how she is really progressing. It’s hard to know all this. Kaylee was the first of the trips to open her eyes today. Her eyes are blue, just like her old man’s! (actually, we’ve been told all babiesa eyes are blue this early in life, doh!).
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I’m sorry Kayla had a bad head u/s. I know how scary your life is right now. My triplets were born at 26w2d. My son, Ben, passed away at 4 days from a pulmonary hemhorage. Lauren had a grade IV/IV bleed and it was a very long hard NICU road for her. Maggie had an uneventful NICU stay.
I’ll say a prayer for all of your precious kiddos.
Gina
Hoping for the best. You have our love but if there’s more we can do, let us know.
Paul & Laura
Tobie and Eric
I found your site through Triplet Connection. I just wanted to tell you that my son had a Grade I/III with s stripe that was a IV in the back of his head. He is now 2 1/2 and fabulous! He is smart and funny and loves to dive off the couch head first in an effort to make his sisters laugh! Please have faith!! They might be small…but they are mighty! We will be praying for you!
Kim
Hi! I also read about you through Triplet Connection and wanted to extend my support.
Our triplets were born at 26 weeks gestation and all 3 of our babies had Grade IV brain bleeds. (One a bilateral Grage IV, one a Grade III and IV and the other a II and IV) The neonatologists also predicted a poor outcome for our kiddos. Unfortunately, we did lose one little boy this past September at 11 months of age. (from complications not directly related to the bleed itself) But, the other 2 babies are doing so well! Both are walking at 16 months of age (13 months adjusted) and are catching up with their peers developmentally. My point is, the effects of the bleed were minimal. The brain is so amazing and so resilient. Please, dont give up hope.
I will be keeping your family in my prayers. Best of luck. Stacy
Eric & Tobie
My heart sunk when reading the passing of Kaylee. I pray now for the strength and well being of Paige & Cole. May your future be bright and hectic as it should be as parents. Eric, maybe you should be writing books. You have a talent I see in many gifted authors and being able to put the feelings into words they way that you did is a special gift. I want to thank you for sharing your lives with so many readers. Prayers will continue for healing and peace within the family towards happier times. God Bless you and you wonderful family. Cat Sweetsir