Tobie was able to hold both babies today. Of course not at the same time. Paige did super well with it. You can really tell when the babies love it because their O2 level peaks when they are on Tobie’s chest. You just have to be prepared to sit there for a while because you can’t move when you are holding the babies. The transition from the bed to her chest is pretty traumatic for the baby. Cole’s face is pretty funny looking when he is on her chest. He looks like he is in so much agony. He frowns, he sticks out his tongue, he squirms a little. He settles down and enjoys it though.
I don’t know what it is about Paige, but they cannot get that freaking PVCC line in (that’s the central line that provides most of her nutrition). They poked Paige again trying to get the line in correctly. That makes 6 times. This is a big procedure. Typically they would leave this line in for up to 30 days before replacing. She has had it put in 6 times in 2 weeks. Poor girl. So we’ve decided not to put it in. We are going to up her feedings 1 cc every 12 hours (for those of use who do not work in a hospital, 1 ounce is ~ 30 cc). She currently is at 6 cc a feeding. She gets fed every 3 hours. She just hasn’t been gaining any weight. She has barely gained 2 ounces since being born. So far she is tolerating the feedings, so that’s a good sign. As long as they can keep upping the cc, they will not have to put the PVCC line back in. I think they will not be concerned anymore about it until she is up to 12 cc a feeding. Okay, everyone at once, fingers crossed.
Cole does have his PVCC in, so that’s good. They are going to try to up his feedings as well so he can eventually get his central line removed. The neurosurgeon came by and for some reason measured Cole’s head. She didn’t like how big it has gotten. The average head growth is about 1/2 cm per week. His has grown about 1 cm. There a lot of reasons why it could have gotten bigger, most of them benign, but obviously we are extremely worried it’s something bad. I’m just hoping he takes after his father with the big head. We are getting an ultrasound tomorrow to have a look see. I don’t think we can take anymore bad news this week. Fingers crossed again.
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Eric and Tobie,
I will be thinking of you tomorrow with Cole’s ultrasound. Lots of prayers and positive thoughts coming your way! Love the pictures of Cole.
Deb (seabreeze from TC)
Hi Eric and Tobie,
I am praying for you and your precious babies. I am in Phx (I think that is where you are right?)so if there is anything i can do for you let me know. psalm121@cox.net
My prayers are with you both and those precious babies. Praying for miracles. Catherine Sweetsir
I know you guys have a lot going on and can’t talk yet, so I haven’t called. I just want you to know I check the site a couple times a day for updates and think about you often. Praying, fingers crossed, positive thoughts - I am doing it all for you! Love you.
Nikki
At the risk of sounding like an idiot…I’m jealous about Cole’s tounge! I haven’t seen any tounges yet on our girls, but we did get to see L making lovely spit bubbles.
Thursday is our measurement day.