Tobie here: Wow. I think I scared everyone with my last post. I have been a little on the sad side this past week, I don’t want to downplay my feelings. Some days it just hits you harder than others. But we can’t slow down, we can’t wallow, we just have to keep moving forward and brace for the next blow. I truly believe that Eric and I have enough love to give to the babies that we’ll get through anything. Paige looked better today. She was moved back with Cole late this afternoon. Cole also had a good day. It’s good to see them both together again.
Eric here: This is why I don’t let Tobie post (yes I’m kidding, or am I?). It’s been a dynamic week to say the least. It’s not that it’s crisis time, it’s just everything seemed to be so positive for so long and then it all changes with one diagnosis. It’s not that the babies are in danger, it’s just it opens the door for more what if’s. It’s not that the babies will have disabilities, it’s just that its one more thing to worry about on top of a laundry list of worries. It just feels all too familiar bringing us back to that fateful phone call about Kaylee (wow, haven’t mentioned the K word in a while). Today was a much better day and I think we are back on track (until tomorrow’s eye exam
, it was a short ride).
Anyways, it was a good long day at the NICU. After waiting 30 minutes in line at Einstein Bagels to bring substance to the woman, we headed to the NICU (that’s right I step up and brave that dang place on a Sunday morning, give me some props, if you don’t know what I’m talking about, try going to any breakfast place in Scottsdale on a Sunday). Of course we took separate cars because there wasn’t much chance Tobie was leaving before 6:30 pm. When Grandma and I got there we walked right by Paige’s “Gen Pop” area (yes I watch too much ‘Oz’). There was a baby there in one of those open isolets. We got to our room and Tobie was already holding Cole (mom and I were only 5 minutes behind her in the car, she moves quick). Anyways I ask where Paige is and Tobie said she is in the same spot. She was moved to an open isolet and I thought it was a different baby. Kind of funny, well not really.
The babies got lots of love today. That is when they weren’t pooping and peeing. There were a lot of diaper changes today. There was also some shrapnel as Paige exploded and hit Cole. He’s okay, but his cute red outfit needs a couple of cycles through the laundry. Cole also initiated me today by proving the nurse right and peeing on me as I left him open to the world for only a few seconds as I tossed his used diaper away. I have my eye on that one!
Paige is doing much better today. She barely opened her eyes, which is good. The swelling around her eyes has gone down a lot. She’s almost done with all the ointment treatments as well. She should hit 5 pounds today. Cole has also put on some nice weight and is 6 ounces shy of the 5 pound mark. We tried to feed Cole by bottle again. It looked like he took some milk down, but not really. He fell asleep within a few minutes which is kind of funny because one minute he is sucking away making frowning faces and the next he is passed out. He does try, there is no denying that.
We made a nice home made dinner tonight which is the first dinner we have cooked in a long time (of course except for those dinners made by our friends
). The best part was mom was here to clean up. I’m trying to talk her into staying, but she mentioned something about a job, a husband, a life, and a dog in TX. Oh well.
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So glad you are better today. Is there anything I can do or help you with?
~Gina B.