Praxair came by to switch out the O2. The guy was told that he wasn’t to bring the tank upstairs anymore. He said it was a liability issue. Liability issue? Umm… you guys have put the big tank upstairs 3 times already, how is it all of the sudden an issue? He asked us how long we were going to keep Cole on O2. I don’t know, I really haven’t brought it up with Cole yet. Cole, this is daddy, how long do you want to be on O2? What, only a few more days? Well, problem solved. Tobie asked what they do for other clients who have a 2 story house. He said that they normally use a very long O2 hose. Tobie pointed to the dogs and asked if that was a wise idea in this case? We trip over the 12 foot hose as it is. I’m curious what they do for clients who live on the 2nd floor of an apartment building without an elevator (put the tank on the first floor and run a hose up through the window?). Anyways, Tobie told the guy to just leave it at the base of the stairs and she would take it up. He was like, “It’s 160 pounds, there is no way”. She was like, don’t worry about it, it’s my problem and I’ll take care of it. I guess the guy felt guilty and moved it upstairs. He said don’t count on him doing that again. Right buddy!
Thanks for all the comments about Early Intervention. To be honest, I’m a little doubtful they will be of any help (I’ve now heard more negative comments than positive about EI in different states). But even if they help a little with things, it’s what’s best for the babies. Cole has feeding issues and Paige is behind developmentally. I can only wonder if we had therapy this whole time, we wouldn’t have these issues. It’s frustrating. We had called a few weeks ago and asked what the hold up was. Apparently they needed to have another interview with us before they could finalize the paperwork. Umm..who’s responsibility is it to tell us? Anyways we had that interview and it was the same exact questions we had in the first interview. Needless to say, they said they would finalize the paperwork and get the wheels in motion. 2 weeks later we are still waiting for a phone call. The NICU developmental team did an awesome job with the babies while we lived there. There definitely is a need for therapy. I wish the same team would follow up 6 months post discharge. Could somebody get on that ASAP? Thanks
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oops - I put it in the wrong post part - duh….
Hope the nanny works out for you - just tell her your expectations (if you want her to focus on the babies & not so much the housework) & hopefully she’ll do so. I hope it helps both of you out.
~Gina
Tobie—
You are just TOO awesome!
Way to go Tobie….that is the way to react Praxair. I’d really keep pushing that issue. I would think it would be more of a liability issue if either of you were to get really hurt moving their oxygen tanks because they wouldn’t bring them upstairs.
When our boys were on oxygen we lived in a split foyer. As soon as you walked in you had to go upstairs or downstairs and there was no place to hook up tubing. They had no issues taking the oxygen upstairs.
We lived in Illinois when the boys were born and it took a long time to get the EI started for us too. They were evaluated when they were very young but we didn’t start therapy until we moved to Colorado when they were 15 months old. At that point we had a speech therapist, occupational therapist, and physical therapists. They all came to our house until the boys turned 3 yrs. I’m sure it helped the boys overcome their delays more quickly. Good luck with that!
The babies are to cute!!!!
Just wanted to comment also on the EI as this is what I had to do. Call the actual manager and talk to them and see what is going on and exactly what has happend, I had to do this and I think they were out the next week. Sometimes you really do have to keep up on them so don’t feel like your are bothering them becasue even if you are who cares, your babies are more important. That is what I have learned and still sometimes I have to call every now and then but atleast it gets them out here quicker and I get heard. Hope they come out soon.
Melissa
Mommie to Dillon 3yrs
Caitlin 7 mos(24 weeker and surviving twin,3 mos adj)
Angel ^ Madilyn^
http://360.yahoo.com/meliciousca
Our EI update -
So I finally got around to reading the report that was sent to us a couple of weeks ago (for the evaluation done in May). Not only did it have wrong information (stating that our girls did not receive any immunizations, when in fact they had received both their 2mos and 4mos at the time of eval), but it also stated that the girls would get a follow up in 3 months (instead of the 6 months that I was told). So I called our person and (1) the correction will be made re: immunizations and (2) “oh, I thought I was clear that I would follow you earlier than I usually follow people.”
No, you were clear in that you wouldn’t come out again until November. We now have an August appt for another eval.
Although we “qualify for Early On-Part C” we have not received any services. My understanding is that we won’t receive services until a delay is detected (which we weren’t able to do in May because there were no expectations of what they could do at their adjusted age of 2 weeks), but we will continue to be monitored and that’s the services that we’re currently qualified to receive.
Ugh. I do believe that EI can be helpful once a delay is established and services are provided, but it seems difficult to establish the delay and initially get the services.
(P.S. Once in grade school, you don’t want EI services. At that point in time EI refers to “Emotional Impairment” not “Early Intervention,” and all of these EI references had been very disturbing to me in the begining… I refuse to believe that my children are already impaired emotionally!!!)