“What? I’m going back to the hospital? No No No.You have me confused with some other baby who doesn’t like to eat. Seriously give me a bottle I’ll show you!”
Bad news Cole fans. Cole was admitted to Phx Children’s Hospital this afternoon. His food intake had become pretty poor. In fact he hasn’t gained weight in 2 weeks (I could go on and on about how it consumed about 10 hours a day to get less than 10 ounces down him each day, but I’m too tired). They are probably going to put a NG tube back in him to pump him up with food. I’m sure they are going to submit him to a battery of tests to see if they can find anything medically wrong with him. I’m not sure how long he will be in the hospital, but the peed said count on a few days at the very least.
Tobie is at the hospital with Cole now. She said we are sharing a room with another kid. I’m not happy about that one bit. We’ve done our hardest keeping him secluded since being discharged last May. Now he is in the same room with another kid who’s family is in the same room. I just have a bad feeling he is going to catch a cold during his hospital stay. Tobie may or may not spend the night with him. They do not provide beds or cots for the parents (I guess that’s why they call it Children’s Hospital and not Parent’s Hospital).
This has definitely taken the wind from our sails. I’ll keep you posted as things develop. We’ve already heard the word G-tube mentioned a few times. I’m not happy about that.
Update 9:30 PM: Just talked to Tobie. Apparently they do not have private rooms at Phx Children’s. That blows. She finally was able to talk to the doctor. They aren’t going to touch Cole until tomorrow (why did they want to admit us right away? Son of a…). Originally when the peed said we should go to the hospital, we were really on the fence about going because it was late in the day and we thought they wouldn’t do much to him. How right we were. Right now Tobie says Cole is a little freaked out. He definitely knows he doesn’t like being there. So tomorrow morning they are going to do a barium swallow test to see if he has reflux. Not sure what else they are going to do to him. Tobie is going to spend the night because they want her to try to feed him through the night. Lets just say Tobie will not get one minute of sleep tonight, guaranteed.
Update: 10:45 AM on 7.25.06: Not much to report. Cole and Tobie are still at the hospital. They have a barium swallow test today at 2 PM and a bowel study tomorrow. She wants to be discharged today. We had already had a barium swallow test scheduled for Thursday. They are not giving Cole anything he can’t get at home, plus we risk infection while at the hospital. So they are doing rounds right now and Tobie will plead our case to the doctors. More to come later.
Oh Paige had her pediatric opthamologist appointment this morning (God bless Tobie for going to the majority of these appointments). The doctor doesn’t want to see her for 4 months. We still have a follow-up appointment scheduled with the retina specialist next week. The doctor basically said her retinas should not detach and she should have sight in her right eye. We just won’t know how much until she gets older (she has some excessive scarring in that eye). We are also now working with the foundation for the blind. They will help us with therapy and hopefully we will be able to spot anything funky before it’s a serious problem.
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Poor guy! And poor you guys! What kind of kids hospital doesn’t offer beds for parents? We will pray that this is a very short and productive stay and that Cole gets better very soon!
i am so sorry to hear about Cole. Poor little guy. I know what a Tobie is going through. Ella was over night at PCH when she had her endoscopy. She was inthe same room as a very strange family. My husband stayed the night because he was afraid to leave her there with such a strange family nect to her. We were also worried about germs and were reasured that the “Contagious” kids were kept in a seperate area and the nurses were not shared. Tim slept in the chair beside her bed all night. The barium swallow will not be too bad for Cole. They will be able to see pretty quickly if reflux is the issue. Hoepfully that is all it is and the meds. he will be given will work. Please let me know if I canhelp at all.
Suzan
Dear, dear Cole. Praying for the little guy to have a very short and successful stay at PCH so that he can be packing on the weight soon. Can I say that he looks more robust than all three of my kids at his stage in life? Is it possible that he is just not a big eater? None of my kids were. All three were skimming the bottom of the percentage scales for both height and weight. But yet they did grow at their own curve and maybe he is not? Tobie, hang in there, Mom! You are doing an awesome job!
Cheryl
I”m so sorry you and Cole have to deal with the hospital! Our hospital doesn’t have beds either–just recliners that push waaaay back. You’re right, though–there won’t be much need for a bed since there won’t be much sleep going on for Tobie anyway. I hope Cole does well with the upper GI and they can get him to eat without having to go all the way to a G tube.
Michelle
twomiracles.blogger.com
I am so sorry you are having to go through this hospital junk again…. We are praying for you all…
~Gina
Hi. I have been following your website for some time. I don’t remember how I found it. Sorry about the latest with Cole. Our son was born with severe congenital heart defects. He’s had two surgeries and one more coming up in January. Weight gain has been a big issue here also. He will be two in August and weighs 25 pounds. He still wears some 6/9 months shorts and nothing above 12 months. But he has a bigger upper body. Just no butt. Luckily we never had to put a feeding tube back in. That was a major problem in the beginning. My prayers go out to you.
My husband has a website mainly with stuff about Ethan, though it hasn’t been updated for a while.
Good for you for finding another avenue for ocular support for Paige.
Keep the updates coming for Cole! This probably doesn’t help, but maybe Paige needs to visit him & give him a stern talking to.
Since he’s in the hospital, is he hooked up to the PulseOx? Can you see if it’s going south while he’s feeding?
How’d the barium swallow test go? I hope it was something simple that they can treat and fix promptly so we can see more movies of Cole gnawing on Paige’s nose.