The One Where I Watched ER For The Last Time

eric   September 29th, 2006      10 comments...sweet!

Anyone still watch ER? Well one of the story lines this year is one of the doctors, Abby, having a preemie baby. Oh joy. Not sure how I feel about this one. Anyways, a lot of what I’ve seen so far of the storyline is like a real condensed version of life in the NICU, so they are getting a lot of it right (on further watching, they definitely didn’t get it right), which makes it that much harder to watch. Oh how I miss the George Clooney days.

Update: Okay, I’m writing my comments as I watch the show:

1. Wait the baby is barely surviving and then 1 week passes and he’s a feeder and grower! Ugh, I’m beginning to hate this show more.
2. The “Quiet Please” sign. Classic. I saw a lot of mom’s put signs like that on their baby’s cribs (including mama Kaufman). The NICU can be such a LOUD place.
3. Abby’s comments about “Have you checked the mail lately“. Ugh, we still have mail issues. In fact the post office stopped delivering our mail this week and I had to go down to the post office to have it redelivered. Have I told you all how much I hate mail and everything that has to do with mail? Last week we had some prescriptions sent to us in the mail. It came in a box that didn’t quite fit in our community mailbox. Our mail woman jammed it in there so tight I had to go get a knife and carve it out. I left the box in the mailbox because I couldn’t get it out. She threw it on our front door the next day, but she couldn’t have knocked on our door to say we had too much mail? What happened to the days where we knew the name of the person who delivered our mail. Oh wait, that was before my time, but still!
4. Son of a bi…The baby now has NEC and was rushed into the OR. I now officially hate this show.
5. Abby chastises her mom for making the “Quiet Please” sign. How ungrateful!
6. What? The baby is already out of surgery and the NICU? That was quick. Wait a minute Abby’s holding him with no tubes or leads? The baby is already wearing baby clothes? Okay, I’m done with this craptastic show. I’m only watching Grey’s Anatomy for now on. Update: Apparently there was some text flashed on the screen saying “2 months later”. I’m still done with the show. Now if I can figure out how to tell Tivo I don’t like this show anymore, I would be golden.

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  • Posted in: About

    GI Cole

    eric   September 29th, 2006      5 comments...sweet!

    We had a GI appointment the other day. It was more of an impromptu appointment because the nutritionist was concerned about Cole’s weight gain. Basically, Cole’s doing just fine. If you look at his past 6 month growth curve, it has sucked. But the past month or so we have started to make great gains with him with speech, physical, and play therapy. He now cries for the bottle, is much easier to feed, and eats much more regularly. Our nutritionist is very aggressive with preemies, trying to get them to their true weight by their 1st birthday. Unfortunately with all of Cole’s previous issues, I don’t think that’s going to happen. But the good news is I think we are more on course now. The GI doctor provides a good balance for us because he is pretty laid back about things. He did prescribe us Reglan. Remember when I thought Cole had some issues with his stomach not emptying the contents that quickly? Well this drug should allow his stomach to pass food quicker. It does have some side effects, so we are going to keep a close eye on him (irritability, loose stools, etc). Cole still only takes 3 ounces a feed, so the thought here is maybe he can take more per feed and get his stomach can grow (Paige was taking 3 ounces a feed the day we left the NICU in May to put it in perspective). We’ll see what happens with that.

    On the Paige front, she made it a complete night without waking up to feed. Wow! I know what you are saying more sleep for you us, right? Not so fast, Cole still woke up 3 times to feed. Cole’s new thing is flipping over on his belly at night. He’ll wake up crying wanting to be flipped back over. I think we need to get PT on that because I’m tired of waking up to flip him like a pancake (and when I say I, I mean Tobie).

    Oh, another one of our infamous readers (and commenters), had his first little girl today. Well, maybe little isn’t the right world as she was 8+ pounds. Congratulations Joe and Liz. We look forward to letting your daughter date Cole.

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    Apparently carrots stain just about everything the…

    eric   September 26th, 2006      1 comment...cool!

    Apparently carrots stain just about everything they touch.
    I hope Cole likes the smell of carrots.

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  • Posted in: About

    Where to begin

    eric   September 25th, 2006      7 comments...sweet!

    So much has happened since our last big post. Well not really. Let’s see, Paige is definitely have some sight issues with her right eye. We are totally bummed about that. We talked to our eye doctor about when we patch Paige’s good eye, she freaks out. It looks like she might have CVI. Basically the brain doesn’t make the right connection to the eyes. The big problem with this diagnosis is we just don’t know what she can and can’t see or how well she can see since she can’t let us know. That is probably the most frustrating thing about this. Sometimes you look at her and trick yourself into believing she can see you just fine, but can she? It’s actually really difficult to tell sometimes. That’s the thing about CVI, she might be able to see some of the time and other times she could have some sort of visual impairment. We are trying to get another impromptu appointment with the eye doctor just to triple check everything. In the meantime we are patching Paige’s good eye for 8 hours a day. Let me tell you, there is a lot of crying in our house nowadays. :(

    Remember that post about our nutritionist being really concerned about Cole’s weight? Well somehow we now have an appointment with our GI doctor this week. We weren’t scheduled to see him for another month. Our speech therapist is adamant about them not doing a thing with Cole. We shall see what comes from that appointment. Cole’s eating habits have definitely improved over the last month. I can only attribute that to all the therapy Cole has been receiving. Every week he is looking better in better in all things baby.

    The good news this past weekend was my parents were here in town from TX. The bad news was Tobie has been super sick since Thursday. Luckily we had the family here to help out because our leader was out of commission. The babies are under sick-watch 2006. Our peed wants us to bring them in at the first sign of trouble (so far nothing, they look and sound great). We had a great time with the parentals. There were talks about us moving to San Antonio to be closer to them. Just talks people, nothing definite. I’m hoping a bidding war breaks out between all the out of state relatives. Yes you can buy our relocation! I might even throw in a baby. I kid I kid (make me an offer). It does suck not being close to a lot of our extended family, but I guess that is life, right? Why you all don’t want to live in AZ is beyond me. It’s a dry heat people.

    Lastly, Paige started laughing this past weekend. It happened while we were feeding her pudding. It was hilarious. Unfortunately I screwed up the video I was taking of it, but did manage to get some good snapshots (seen above). I’m totally bummed out about that the lost video though. I have to say there is nothing more infectious than a baby’s laugh in response to your laugh. Why can’t we laugh all day instead of cry? Do you hear me babies? Do you smell what the Eric is cooking?

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    You thought you had it rough

    eric   September 25th, 2006      3 comments...sweet!

    Just when you think you have it rough, you read a story like this. Don’t read it if you don’t want to be sad.

    Oh, the doctor who delivered the child, Dr. Francois, is our doctor. So they were definitely in good hands. She is one of those super-fabulous doctors we are thankful for having met and apart of our lives.

    We’ll post a blog update later.

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    A Whole Lotta Cole

    eric   September 22nd, 2006      3 comments...sweet!

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    The Clinic

    eric   September 21st, 2006      5 comments...sweet!

    We had our monthly appointment with the pulmonology clinic today. Tobie goes alone to most of these appointments with both babies, so sometimes it’s a little crazy, like today. Luckily today, Tobie ran into our old NICU speech therapist who was recruited to help out. So of course Paige checked out fine. They don’t want to see her for a long long time. Cole fared pretty well. The doctor asked us what we wanted to do with Cole’s O2. Umm get him off of it? So we are going to do another overnight study in the next couple of weeks to see how Mr. Cole does without O2. Scary, isn’t it?

    Cole was also seen by his nutritionist (doesn’t Cole have the biggest posse ever?). She was very concerned about Cole’s growth. He has basically stalled on the growth charts and is now hanging out at around the 10th percentile on the adjusted growth charts. She’s concerned because he should be so much bigger based on the high calorie diet he is on. I think we have run out of ideas for getting more calories in him. She’s going to talk with his GI doctor about him and maybe get us into a weekly feeding clinic (oh boy, another weekly doctor appointment). Oye, I have a feeling we are going to be bringing up the G-tube discussion again. Cole is eating pretty good nowadays. That’s what is so frustrating. He doesn’t eat a lot at each feed though, but eats pretty constantly throughout the day. I know what some of you are going to say, “Cole is just on his own growth curve”, “He’ll catch up someday”. I’m sure some people may find comfort in that, but not us. We can’t just sit and wait for things to happen if there are things we can do now to help. Only time will tell what awaits us next.

    One last thing, I’m pleased to announce that our good friends Matt & Laurie gave birth to their second child, lil’ Ainsley Nicole yesterday. I was lucky enough to visit them today and let me tell you, babies look much different when they are born ripe. :) Congrats you two, err three, I mean four!

    Ack, one more thing, is this the coolest or freakiest thing you have ever seen? I’m getting one of these so I always have someone to laugh at my jokes. Thank you Elmo, you complete me.

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    Pics

    eric   September 20th, 2006      1 comment...cool!

    “Of course I can feed myself, but could you open the jar first for me?”

    “Of course I can feed myself, but could you put the bottle in my hands first for me?”

    “Judo Kick”

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