We had our monthly appointment with the pulmonology clinic today. Tobie goes alone to most of these appointments with both babies, so sometimes it’s a little crazy, like today. Luckily today, Tobie ran into our old NICU speech therapist who was recruited to help out. So of course Paige checked out fine. They don’t want to see her for a long long time. Cole fared pretty well. The doctor asked us what we wanted to do with Cole’s O2. Umm get him off of it? So we are going to do another overnight study in the next couple of weeks to see how Mr. Cole does without O2. Scary, isn’t it?
Cole was also seen by his nutritionist (doesn’t Cole have the biggest posse ever?). She was very concerned about Cole’s growth. He has basically stalled on the growth charts and is now hanging out at around the 10th percentile on the adjusted growth charts. She’s concerned because he should be so much bigger based on the high calorie diet he is on. I think we have run out of ideas for getting more calories in him. She’s going to talk with his GI doctor about him and maybe get us into a weekly feeding clinic (oh boy, another weekly doctor appointment). Oye, I have a feeling we are going to be bringing up the G-tube discussion again. Cole is eating pretty good nowadays. That’s what is so frustrating. He doesn’t eat a lot at each feed though, but eats pretty constantly throughout the day. I know what some of you are going to say, “Cole is just on his own growth curve”, “He’ll catch up someday”. I’m sure some people may find comfort in that, but not us. We can’t just sit and wait for things to happen if there are things we can do now to help. Only time will tell what awaits us next.
One last thing, I’m pleased to announce that our good friends Matt & Laurie gave birth to their second child, lil’ Ainsley Nicole yesterday. I was lucky enough to visit them today and let me tell you, babies look much different when they are born ripe. 
Congrats you two, err three, I mean four!
Ack, one more thing, is this the coolest or freakiest thing you have ever seen? I’m getting one of these so I always have someone to laugh at my jokes. Thank you Elmo, you complete me.
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I think Elmo is a few short years away from becoming self-aware. Only Super Grover can stop him now.
Per Cole’s caloric intake…is there anything more dense that they can give him? Now that he is able to smear baby food on his face, surely there is something more tightly packed…like
http://www.krispykreme.com/frozenblends.html (mmm, drinkable donuts)
or
http://register.eas.com/OA_HTML/ibeCCtpSctDspRte.jsp?section=10481 (thank me later if he lifts your car off of you).
First, I can’t help myself. I love the Elmo. He used to drive me nuts–now I have 2 little excuses to buy junk like that.
Jim can’t wait to take Adam out for sausage gravy and biscuits someday.
And about Cole…I know those growth worries. Unless you have a doctor pointing out that little dot on the growth curve, you really can’t know the feeling. We put scoops of formula powder in Adam’s baby food to make it high calorie. I also puree avacadoes and put scoops of formula powder in it. One little bowl is about 220 calories. This is just our way of increasing calorie intake–not doctor recommended
Michelle
I’m on the edge of my Tickle Me Elmo Chair with anticipation. I think I’ll get you about 36 of them so you can just scatter them around your house.
Have you thought of letting Cole sleep in a Formula Bath? Bonus: he’ll get that baby-smooth skin everyone always talks so highly of.
I’m holding my breath about the O2vernight study…
You should compile a list of each kid’s posse. I’m losing track of all the playas.
Good luck to Cole on his overnight O2 study. How did you guys get an appointment so quickly? We have to wait so long over here in the OC.
I think that Elmo would seriously scare our kids, but I think I’d like it as a toy for me :).
I hope Cole passes his overnight study. We’re starting a weekly feeding clinic for Mady this week. Trying desperately to get her to gain. She’s now on 28 cal, and where it all goes I don’t know. The girl just won’t gain. So far no G button talk yet, but I’m fearing it’s coming. 15 oz a day even at 28 cal isn’t enough, and she’s plateaued on the growth curve. I really hope that Cole can start going in the right direction with his feeds, I’ll be thinking of him, and Paige!