Paige: Hard to tell if her surgery worked. She is still cocking her head an awful lot but that may be a habit that takes a while to break. Her eyes were bloodier yesterday than the day of surgery and it was painful to look at her. She is not in any apparent discomfort though and was playing harder than ever yesterday. (Eric here: Aunt Amy, since we have cured Paige’s bad sleeping, I won’t need to talk to your doctor friend. Thank you though for thinking of us.)
Cole: Got the results of half of his lab work yesterday. Everything falls within normal range except his CO2 levels. ??? They said this could be a result of a bad phleb stick. But Cole was an absolute angel getting his blood drawn and it did not appear to me that the tech had any difficulty drawing his blood. I need to ask the peed about this. Because if he’s still not breathing well…that could account for a loss of appetite. Again…if he’s not breathing well no one would ever know because the kid is NON-STOP! Our neurodevelopmental doc called the other day and wants him to see an ENT to get the fluid out of his ears. Our peed wanted to just wait it out. But with Cole’s speech delays the neuro doc wants to be proactive. I’m in favor of waiting it out because I don’t want to go through any more procedures if this is something time will heal. We’ll see.
Drew: Cute as ever. Babbling like crazy. Likes to fake cough. Started participating in therapy yesterday by putting puzzle pieces in puzzles. (Smartest baby ever!) He’s playing so well with P and C….it’s making my life a lot easier!
Moxie: Her tumor erupted on the back of her neck again yesterday. I can’t explain how disgusting that is. It makes me gag. Not to mention this huge chunk of skin, puss, and hair that I picked off the floor where her explosion landed. Picture for a second (if you can without throwing up in your mouth) how gross it would have been if oh, say Drew, found that mass before I did. Uughh. I just gagged.
Nikki: Since you never call me back: just wanted to let you know that the cube that plays rhymes is our favorite Christmas present. All of them love it and I sing five little monkeys in my sleep now. Thanks!
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I hope that Paige heals up quickly. I know it must be terrible to look at her with bloody eyes, I can’t even imagine. I think it’s a good thing to talk over with the Peed, what the neuro said, and sort of get his input as far as another procedure. I would also be concerned about the CO2 is everything else was ok, and he wasn’t jerking or fussing during the draw. Drew is a little doll, I bet he’s the life of the party! As for Moxie, yuck. I don’t think I could handle that at all…with 2 children under the age of 4, I can only imagine what would happen here (throwing up in my mouth now). Thinking of you all, and Praying for Paige’s surgery success, and quick healing.
Howdy! I’ve been a reader of your blog for what seems like forever…but I’ve only left a comment a couple of times. I just had to chime in when I read about the fluid in Cole’s ears. Coming from a parent who was formerly of the wait and see if it goes away thinking….get the tubes! My first son had what was basically one constant ear infection for the first three years of his life. The peed kept suggesting tubes, but I kept saying no. I had no idea what an impact it was having on his speech. After years, I finally relented and accepted the referral to the ENT. The ENT described it as hearing as though you’re under water. You repeat what you hear. Since he wasn’t able to hear many starting and final consonants, he was having lots of trouble repeating them in his speech.
The actual procedure, surgery, was what held me back for so long. I was so relieved when the ENT said he performed the tube procedure without putting them to sleep. What a relief! He said with a small child, laughing gas is all that is needed to put them totally out. No breathing tube, nothing of the sort. The actual procedure takes less than five minutes…and I’m not kidding. They took him back in a little wagon. I went and used the restroom. As soon as I came out the doctor came out. I thought there was a problem, but he was just coming to get me and say they were done. He didn’t need pain meds or anything, and didn’t seem to be in any discomfort at all. If anything, he seemed to feel better without the constant pressure of fluid filled ears.
For a couple of weeks afterwards, my son would cover his ears when we went on walks because the sound of cars now seemed so loud. He never acted like he couldn’t hear well before the tubes. I was so happy I had relented and had it done.
Moving on…so glad Paige is recovering well! It’s amazing that she’s running around right after having eye surgery. I think I’d be in bed crying and wanting sympathy for about a month. Kids are so resilient.
I just saw this video and I know you take P&C swimming so i thought maybe you guys would want to check it out. If they had it in Canada we would sign our son up for sure!
http://www.childdrowningprevention.com/index.html
I am sorry I haven’t had a chance to call you back.
I promise I will call - today or tomorrow?
I am happy they love the Together Tunes!
I have some more things to send again!